Support Groups
By definition, a support group is a “a group of people with common experiences or concerns who provide each other with encouragement, comfort and advice,” + we couldn’t agree more!
Connecting with people who have a shared life experience has the ability to make one feel less alone, less misunderstood and more connected. There is empathy and bonding, there is advice to be given, and there is a very deep sense of accepting and sharing with raw vulnerability.
Below are a few places to begin your quest of connection. And, as always, we are here … always, always.
Support :
“To bear all or part of the weight of; to hold up”
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End the Legacy
End the Legacy members know the importance of being able to connect with others impacted by these inherited diseases. End the Legacy offers 4 different support options
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AFTD Support Groups
Hosted throughout the different regions of the nation, the AFTD support groups offer a multitude of locations (including virtually!) and topics.
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HFC Support Group.
Bringing the light! HFC is such a powerful resources for the FTD community - they even created a support group specific to FTD. Game changer!
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MGH FTD Unit
The FTD unit as Mass General has a special place in Remember Me’s heart. Not only that, our sweet friend Katie Brandt is the head of patient relations over there, so you know you’re in good hands!
We have walked this road, we know exactly how life altering it can be. Get in touch with us.
We are here…
…. every step of the way.