https://www.remembermeftd.com/blog daily 0.75 2025-06-27 https://www.remembermeftd.com/blog/10-interviews-with-ftd-spouses monthly 0.5 2025-06-27 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/7fcf4443-b92e-48ce-9560-2acf0d45e803/Season+10+Episode+3+Mike.png Our Blog - 10 FTD Stories from a spouses perspective - Make it stand out Mike (Season 10, Episode 3) Listen here. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/07943958-0c14-4546-87ae-58ffefd258b5/Season+9+Episode+13+Craig.png Our Blog - 10 FTD Stories from a spouses perspective - Make it stand out Craig (Season 9, Episode 13) Listen here. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/77479fbb-a9ba-428e-95cd-d5ea6d7b605a/Season+9+Episode+8+Evan.png Our Blog - 10 FTD Stories from a spouses perspective - Make it stand out Evan (Season 9, Episode 8) Listen here. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/a23089b4-65b0-4e9a-8b28-b71b341a5018/Season+4+Episode+6+Karen.PNG Our Blog - 10 FTD Stories from a spouses perspective - Make it stand out Karen (Season 4, Episode 6) Listen here. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/439d3dd6-9fbf-4a61-b4c3-425561466884/Season+4+Episode+5+Jeff.png Our Blog - 10 FTD Stories from a spouses perspective - Make it stand out Jeff (Season 4, Episode 5) Listen here. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/67c842f0-854f-43a9-9b0e-fedbec21939c/Season+3%2C+Episode+18+Lia.png Our Blog - 10 FTD Stories from a spouses perspective - Make it stand out Lia (Season 3, Episode 18) Listen here. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/39498938-af6f-4bb8-bad9-1f91d6d49a52/Season3%2C+Episode+14+Paul.png Our Blog - 10 FTD Stories from a spouses perspective - Make it stand out Paul (Season 3, Episode 14) Listen here. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/c6fc00f6-0ca4-4c31-8a9e-7c1436434c97/Season+3++Episode+1%2C+Part+2+Frank+%281%29.png Our Blog - 10 FTD Stories from a spouses perspective - Make it stand out Frank, Pt. 2 (Season 3, Episode 1) Listen here. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/be5da7ab-8ad6-496d-b40f-c2af99ed75b1/Season+2%2C+Episode+6+Remember+Me+X+With+Love+Maureen+%26+Scott.png Our Blog - 10 FTD Stories from a spouses perspective - Make it stand out Remember Me X With Love: Maureen & Scott (Season 2, Episode 6) Listen here. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/244f9dec-864c-4606-8d42-ac83919c95b2/Season+1%2C+Episode+3+Mike.png Our Blog - 10 FTD Stories from a spouses perspective - Make it stand out Mike (Season 1, Episode 3) Listen here. https://www.remembermeftd.com/blog/le5xlqoijc9qw9tkhe225wws4w07ex monthly 0.5 2025-01-07 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/9839e004-8837-4cc4-9d33-5850c4f26f9d/Remember-Me_015.jpeg Our Blog - Heart Full of Love - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/the-importance-of-research-amp-the-real-real-on-what-to-expect monthly 0.5 2024-11-25 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1732556370192-J1RVSHXOBDHK0LN6FDXW/unsplash-image-v7ibB19EUbQ.jpg Our Blog - The Importance of Research & The Real Real on What to Expect! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/the-slowness-of-sundays monthly 0.5 2024-08-26 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1724687646966-9RZPTV25L7K0XO50OVIS/unsplash-image-45sjAjSjArQ.jpg Our Blog - The Slowness of Sundays - As always, I don’t pretend to have all the answers. But I do have a theory. And I should preface, before sharing my thoughts, that this is individual to me. You likely have your own reasons - maybe you’d like to share yours in the comments. No pressure. So, with that, I digress. Let’s get to it. I am a person that loves a plan. I like to know what my day is going to look like, that I have an idea for dinner, and a list of things that need to get done to tackle.. I’m not a huge fan of uncertainty or feeling unprepared. There are a few exceptions.: Spur of the minute adventure (think travel). Anything to do with live music, I’m there. An opportunity presents itself for my kids https://www.remembermeftd.com/blog/season8-bonus-episode14 monthly 0.5 2024-06-20 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/22b230ed-c349-4f2e-9655-61b7bca9735b/14.png Our Blog - BONUS: A Convo on FTD Research with Dr. David Irwin and Dr. Lauren Massimo - Bonus Episode - Number Two! Yahoo! We are back at it with the our two pals who kicked off Season 8 - Dr. David Irwin and Dr. Lauren Massimo. Welcome back, you two and thanks for agreeing to spend a little more time with us. We hope you all enjoy the episode… read on for a sweet little recap. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/16f73cf6-9d57-4d10-acc8-3add0bef5585/1.jpg Our Blog - BONUS: A Convo on FTD Research with Dr. David Irwin and Dr. Lauren Massimo - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/c9e23e95-9da0-47ca-afaf-e380cb47a366/1.jpg Our Blog - BONUS: A Convo on FTD Research with Dr. David Irwin and Dr. Lauren Massimo - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/b9898efd-440f-4c64-abd1-ea9cb158505e/2.jpg Our Blog - BONUS: A Convo on FTD Research with Dr. David Irwin and Dr. Lauren Massimo - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/2ed12c10-ec41-43c2-87c3-041e7b77203e/Alector_Remember%252BMe%252BPresentation.jpg Our Blog - BONUS: A Convo on FTD Research with Dr. David Irwin and Dr. Lauren Massimo https://www.remembermeftd.com/blog/season8-bonus-episode13 monthly 0.5 2024-06-20 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/d70ec5c3-497b-4542-b28a-18a1bc9dc1ae/13.png Our Blog - BONUS: Understanding Clinical Trials with Dahlia Kamel, M.S. - Surprise! We’re baaaaccckkk! We have two bonus episodes which means y’all get two bonus blogs! Eeeeee… I know, we’re excited too! We are also super excited to introduce you to our pal Dahlia. Dahlia is a Clinical Trials Manager at the Penn FTD Center, who joined the Center in December 2020. Dahlia holds a B.S. in Biology, a B.S. in Psychology with a minor in Neuroscience, a Graduate Certificate in Biostatistics and SAS Programming, and an M.S. in Health/Medical Psychology with a concentration in Cognitive Neuroscience. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/f2479ab8-ea9b-41cb-8b83-4dc80b15493e/Screenshot+2024-06-19+at+8.41.20%E2%80%AFPM.png Our Blog - BONUS: Understanding Clinical Trials with Dahlia Kamel, M.S. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/16f73cf6-9d57-4d10-acc8-3add0bef5585/1.jpg Our Blog - BONUS: Understanding Clinical Trials with Dahlia Kamel, M.S. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/c9e23e95-9da0-47ca-afaf-e380cb47a366/1.jpg Our Blog - BONUS: Understanding Clinical Trials with Dahlia Kamel, M.S. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/b9898efd-440f-4c64-abd1-ea9cb158505e/2.jpg Our Blog - BONUS: Understanding Clinical Trials with Dahlia Kamel, M.S. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/2ed12c10-ec41-43c2-87c3-041e7b77203e/Alector_Remember%252BMe%252BPresentation.jpg Our Blog - BONUS: Understanding Clinical Trials with Dahlia Kamel, M.S. https://www.remembermeftd.com/blog/wct2htzhzwr7z62p6w1ufmzn78doez monthly 0.5 2024-06-18 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/e9ba16e7-afd3-4dbf-b607-b0e336275599/7.jpeg Our Blog - In Conclusion: Season 8 Finale - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/439c7e4f-a9ee-4de3-8f95-00b81496d58b/3.png Our Blog - In Conclusion: Season 8 Finale - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/a697005e-0578-42d6-9ddc-bd0957443581/1.png Our Blog - In Conclusion: Season 8 Finale - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/000038df-d073-4339-8ac7-ff1b8548ea1e/2.png Our Blog - In Conclusion: Season 8 Finale - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/season8-episode11 monthly 0.5 2024-06-18 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/af38a9b4-0913-494a-b621-dca37df96429/EDITSKate+6-3.jpg Our Blog - Understanding Care Concerns: Guardianship, Power of Attorney and More with Katherine Lietz MSW, LSW - Kate steps in and explains her role at the UPenn FTD center – read more about her here – her role is SUPER important and, looking back – Maria and I would have loved someone like Kate on our team. Click here to learn more about Katherine “Kate” Lietz MSW, LSW here. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/16f73cf6-9d57-4d10-acc8-3add0bef5585/1.jpg Our Blog - Understanding Care Concerns: Guardianship, Power of Attorney and More with Katherine Lietz MSW, LSW - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/c9e23e95-9da0-47ca-afaf-e380cb47a366/1.jpg Our Blog - Understanding Care Concerns: Guardianship, Power of Attorney and More with Katherine Lietz MSW, LSW - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/b9898efd-440f-4c64-abd1-ea9cb158505e/2.jpg Our Blog - Understanding Care Concerns: Guardianship, Power of Attorney and More with Katherine Lietz MSW, LSW - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/e4485a2f-31b6-42aa-afdf-ba7fa9efa83b/Season+8-2.png Our Blog - Understanding Care Concerns: Guardianship, Power of Attorney and More with Katherine Lietz MSW, LSW - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/episode10-laurenmassimo monthly 0.5 2024-04-16 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/68d8b4ac-d5aa-46b1-865b-17067ffc13fa/Episode+10.jpeg Our Blog - Understanding Disease Trajectory with Dr. Lauren Massimo - Dr. Massimo joins us back at the mic to discuss disease progression, what to expect and the general “curvilinear in nature” that FTD typically exhibits. Dr. Massimo thoroughly explains the three stages (mild, moderate & severe) while highlighting the most common complications in FTD. “One of the biggest hurdles you and your family will experience is finding a clinician who will walk this entire journey with you.” And, boy is she right! https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/16f73cf6-9d57-4d10-acc8-3add0bef5585/1.jpg Our Blog - Understanding Disease Trajectory with Dr. Lauren Massimo - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/c9e23e95-9da0-47ca-afaf-e380cb47a366/1.jpg Our Blog - Understanding Disease Trajectory with Dr. Lauren Massimo - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/b9898efd-440f-4c64-abd1-ea9cb158505e/2.jpg Our Blog - Understanding Disease Trajectory with Dr. Lauren Massimo - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/episode9-saramanning monthly 0.5 2024-04-02 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1994edc3-7c90-4e88-9422-51af4e71826c/Sara+headshot.jpeg Our Blog - Understanding Hyperorality & Alcohol Use with Dr. Sara Manning https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/16f73cf6-9d57-4d10-acc8-3add0bef5585/1.jpg Our Blog - Understanding Hyperorality & Alcohol Use with Dr. Sara Manning - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/c9e23e95-9da0-47ca-afaf-e380cb47a366/1.jpg Our Blog - Understanding Hyperorality & Alcohol Use with Dr. Sara Manning - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/b9898efd-440f-4c64-abd1-ea9cb158505e/2.jpg Our Blog - Understanding Hyperorality & Alcohol Use with Dr. Sara Manning - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/episode8-drrhodes monthly 0.5 2024-03-25 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/06f93532-9dba-4fb9-931d-e7d5e694bb09/Emma+headshot.jpg Our Blog - Understanding Loss of Empathy with Dr. Emma Rhodes - We had the pleasure of talking to Dr. Emma Rhodes while she was on the West Coast (best coast) at UCSF. Carving out time to chat with us while working collaboratively with another institution is just the best. Thank you for your time and for sharing all this wonderful information with us, Dr. Emma! https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/2b5b93e5-c4b9-4fa6-b626-6dc9f30d87c5/IMG_6502+2.JPG Our Blog - Understanding Loss of Empathy with Dr. Emma Rhodes - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/16f73cf6-9d57-4d10-acc8-3add0bef5585/1.jpg Our Blog - Understanding Loss of Empathy with Dr. Emma Rhodes - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/c9e23e95-9da0-47ca-afaf-e380cb47a366/1.jpg Our Blog - Understanding Loss of Empathy with Dr. Emma Rhodes - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/b9898efd-440f-4c64-abd1-ea9cb158505e/2.jpg Our Blog - Understanding Loss of Empathy with Dr. Emma Rhodes - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/ftd-and-als-ep7 monthly 0.5 2024-03-14 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/a3a71dfb-ddf9-4047-9fb5-04399ea178d3/EDITSCoreyMcMillan3.jpg Our Blog - Understanding ALS & FTD with Corey McMillan, PhD - Being third Co-Director of the UPenn FTD Center, Corey’s lab “aims to develop robust biomarkers that can be used to better diagnose neurodegenerative diseases, accelerate drug discovery of disease-modifying agents, and to define essential clinical trial endpoint measures.” https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/c6d9b39b-a862-4201-8dae-9ffe62ed1fa7/Mom%2Band%2BMe.png Our Blog - Understanding ALS & FTD with Corey McMillan, PhD - Make it stand out Maria and her mom, Lia. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/16f73cf6-9d57-4d10-acc8-3add0bef5585/1.jpg Our Blog - Understanding ALS & FTD with Corey McMillan, PhD - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/c9e23e95-9da0-47ca-afaf-e380cb47a366/1.jpg Our Blog - Understanding ALS & FTD with Corey McMillan, PhD - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/b9898efd-440f-4c64-abd1-ea9cb158505e/2.jpg Our Blog - Understanding ALS & FTD with Corey McMillan, PhD - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/disinhibitionandimpulsecontrol monthly 0.5 2024-03-05 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/dd31e279-0727-485f-9953-8aad3afe856c/IMG_0067.JPG Our Blog - Understanding Disinhibition, Impulse Control and Hypersexuality in FTD with Dr. Katya Rascovsky - Dr. Rascovsky, a neuropsychologist with extensive clinical and research experience in neurodegenerative disease, gently explained the complexities of this behavior with such poise and assurance. For the past 20 years, her research has focused on the cognitive and behavioral characteristics of Frontotemporal Degeneration (FTD) and Alzheimer’s Disease (AD), so she’s definitely our people, y’all! https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1605832900306-UH7CFU872TGS4IFOIR6D/Frankie.jpg Our Blog - Understanding Disinhibition, Impulse Control and Hypersexuality in FTD with Dr. Katya Rascovsky - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/16f73cf6-9d57-4d10-acc8-3add0bef5585/1.jpg Our Blog - Understanding Disinhibition, Impulse Control and Hypersexuality in FTD with Dr. Katya Rascovsky - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/c9e23e95-9da0-47ca-afaf-e380cb47a366/1.jpg Our Blog - Understanding Disinhibition, Impulse Control and Hypersexuality in FTD with Dr. Katya Rascovsky - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/b9898efd-440f-4c64-abd1-ea9cb158505e/2.jpg Our Blog - Understanding Disinhibition, Impulse Control and Hypersexuality in FTD with Dr. Katya Rascovsky - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/understanding-primary-progressive-aphasia-with-naomi-nevler-md monthly 0.5 2024-02-13 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/d1e4e43d-3867-473a-bc73-5eb2f22edf36/Unknown.jpeg Our Blog - Understanding Primary Progressive Aphasia with Naomi Nevler, MD - Naomi Nevler is a 2004 graduate of the Sourasky School of Medicine in Tel-Aviv University, Ramat-Aviv, Israel. In 2015 she completed her residency in Neurology at the Tel-Aviv Medical Center. Dr. Nevler’s experience treating patients who suffer from neurodegenerative disorders has led her to join Dr. Grossman’s lab at the Penn FTD Center with the intention of specializing in the field of Behavioral Neurology. Naomi really broke down the ins and outs of PPA and did so beautifully. To learn more about her work in the field, click below! https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/16f73cf6-9d57-4d10-acc8-3add0bef5585/1.jpg Our Blog - Understanding Primary Progressive Aphasia with Naomi Nevler, MD - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/c9e23e95-9da0-47ca-afaf-e380cb47a366/1.jpg Our Blog - Understanding Primary Progressive Aphasia with Naomi Nevler, MD - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/b9898efd-440f-4c64-abd1-ea9cb158505e/2.jpg Our Blog - Understanding Primary Progressive Aphasia with Naomi Nevler, MD - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/ritualistic-behaviors-with-gillian-bradley monthly 0.5 2024-02-07 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/cadcfe87-610c-4f6f-93a1-07b190f31e7b/GBradley+Headshot.jpg Our Blog - Ritualistic Behaviors with Gillian Bradley - “As the nurse for the center, I hope to be a resource for both patients and caregivers as they navigate new diagnoses, optimize symptom management and pursue research opportunities to join the fight against these devastating diseases. " Gillian is the clinical research nurse at the Penn FTD Center. She received her BA in neuroscience from Drew University and her MA in Psychology and Brain Sciences from Indiana University Bloomington, where she first began her career studying molecular mechanisms of protection in neurodegenerative disease mouse models, but she quickly learned she wanted to work directly with patients and care partners rather than in a laboratory setting. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/16f73cf6-9d57-4d10-acc8-3add0bef5585/1.jpg Our Blog - Ritualistic Behaviors with Gillian Bradley - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/c9e23e95-9da0-47ca-afaf-e380cb47a366/1.jpg Our Blog - Ritualistic Behaviors with Gillian Bradley - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/7ee6d637-29bf-402c-a813-eed846e30751/2.png Our Blog - Ritualistic Behaviors with Gillian Bradley - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/agitation-aggression-with-dr-jeffry-maneval monthly 0.5 2024-01-23 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/9ca06981-cce6-48d2-8297-ed39ff6007a6/Jeff+M+headshot_edited.jpg Our Blog - Understanding Aggression and Agitation with Dr. Jeffry Maneval - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1705612651112-03DU79DU7A0LQ83Z6VBJ/image-asset.jpeg Our Blog - Understanding Aggression and Agitation with Dr. Jeffry Maneval - Another behavior that can co-occur with agitation and aggression is PARANOIA which present as either hallucinations or delusions. As we discuss this branch of agitation, Dr. Maneval nods knowingly - “the best thing you can possibly do is validate, redirect and tap into your empathy.” He continues with “don’t challenge them nor shame them. Love them and hear them.” Avoid confrontation. “We live in eachother’s worlds, and no one likes a world where they don’t feel understood.” https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/16f73cf6-9d57-4d10-acc8-3add0bef5585/1.jpg Our Blog - Understanding Aggression and Agitation with Dr. Jeffry Maneval - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/c9e23e95-9da0-47ca-afaf-e380cb47a366/1.jpg Our Blog - Understanding Aggression and Agitation with Dr. Jeffry Maneval - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/b9898efd-440f-4c64-abd1-ea9cb158505e/2.jpg Our Blog - Understanding Aggression and Agitation with Dr. Jeffry Maneval - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/apathy-with-dr-lauren-massimo-phd-crnp monthly 0.5 2024-01-16 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/4bc0b54f-af2d-4b2f-b37b-b557759a7ca3/Screen+Shot+2023-12-27+at+9.04.17+PM.png Our Blog - Episode 2: Apathy with Dr. Lauren Massimo PhD, CRNP - We loved our conversation with Dr. Lauren. She was a real gem, real brilliant and real passionate about her work within the field of FTD. (To learn more about Dr. Massimo’s career, click here or read on!) Via the UPenn FTD centers website: “Dr. Massimo’s research focuses on identifying the cognitive and neural basis for decline in neurodegenerative disease. Over Dr. Massimo’s decade-long career as a nurse practitioner in cognitive neurology, she has enjoyed the opportunity to work with and support many patients with neurodegenerative disease and their families.” Thanks for your dedication, your effort and your understanding, Dr. Lauren! https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/16f73cf6-9d57-4d10-acc8-3add0bef5585/1.jpg Our Blog - Episode 2: Apathy with Dr. Lauren Massimo PhD, CRNP - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/c9e23e95-9da0-47ca-afaf-e380cb47a366/1.jpg Our Blog - Episode 2: Apathy with Dr. Lauren Massimo PhD, CRNP - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/c4e224da-088d-4493-afe2-40081e831546/2.jpg Our Blog - Episode 2: Apathy with Dr. Lauren Massimo PhD, CRNP - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/season8-episode1 monthly 0.5 2024-01-09 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/68f5cae1-647e-4115-b41f-cd0e58b6f202/EDITSDavidIrwin1-2.jpg Our Blog - Episode 1: Introduction to the Penn FTD Center Team https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/7cca9063-4afc-4ab5-a1ed-9bd8946b5273/Alector_Remember%25252BMe%25252BPresentation.jpg Our Blog - Episode 1: Introduction to the Penn FTD Center Team - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/16f73cf6-9d57-4d10-acc8-3add0bef5585/1.jpg Our Blog - Episode 1: Introduction to the Penn FTD Center Team - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1702590232348-MAE7TG8EPQ07W1NBFL8M/image-asset.jpeg Our Blog - Episode 1: Introduction to the Penn FTD Center Team https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/c9e23e95-9da0-47ca-afaf-e380cb47a366/1.jpg Our Blog - Episode 1: Introduction to the Penn FTD Center Team - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/b9898efd-440f-4c64-abd1-ea9cb158505e/2.jpg Our Blog - Episode 1: Introduction to the Penn FTD Center Team - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/sqwnmyzdifzlldersl85mkigjoljpn monthly 0.5 2023-11-02 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1698957798710-U4FMOVMQX7K988REP3TY/image-asset.jpeg Our Blog - Oh, We’re Here Now? - Maria and I often get asked how we “do it.” How do we talk about FTD all day, how do we hear these stories of such heartbreak and deep sorrow? How? What’s our “secret?” Well, a good magician never tells. Thankfully, though, I am no magic maker. I’m just a girl - ok, a woman - who thinks beauty and pain can co-exist. I love hearing the stories because they are so full of love and adoration. I love chatting about the hard because it makes the soft so much more delicate and exceptional and extraordinary. https://www.remembermeftd.com/blog/cs8bww88ew80jhrdi45ag5r3ea83ca monthly 0.5 2023-10-18 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1697668080837-BTQB0E3D9SXG8IFVRO1S/image-asset.jpeg Our Blog - When The Buffer is Gone - If you’re a tried and true Remember Me fan who recieves our monthly newsletter, you may already be familiar with the term I chose for this upcoming year (If you aren’t, it’s been a new tradition of mine to choose a word that becomes my theme, my mantra for the year ahead). This year, I chose the word Selah https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/9b1d05d7-1a14-4c4f-b8f4-af4f05f1fa87/Screen+Shot+2023-10-12+at+1.10.58+PM.png Our Blog - When The Buffer is Gone - Be gentle with yourself. Take the moment to pause. xo, Rachael https://www.remembermeftd.com/blog/0ek87t93f2uqoo2dvxnvxqondexqiz monthly 0.5 2023-09-11 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/172880e8-81bb-4aa5-a725-d8bac41a88b2/1466D62A-6908-4D21-ABC8-9215996A0BF8.jpg Our Blog - Saying Goodbye (conclusion) - And to be completely honest, I think going back in to my mind was helping me not focus on what was actually happening. I shook my head and went back to my dads bedside. That is not how he would want me to think about this. He would never want me to be scared. I sat down in the chair beside his bed and placed my hand over his. His skin was so soft and so cold. 7:02. Time was creeping as if to keep him around longer. At that moment, the thought of him leaving this place for the place beyond was like a punch in the gut. And on top of that, I was so tired - I could barely see straight. I sat in silence, with my hand on his, for what seemed like an eternity. My body shifted, I rested my head on his bed, I leaned back, but I never let go of his hand. His breath continued to labor and I noticed there were moments that he wasn’t breathing at all. I would find myself holding my breath in solidarity. He would eventually take in a big breath of air and so would I. During one of the “holding breath” moments, there was a light tap on the door. Mark, I thought while i silently pleaded for my dad to start breathing again. “Come in,” I said, sounding out of breath. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/a23c5103-4c6e-4a28-9a7d-810a056302ec/B5738832-6E80-4F5E-B370-A4DD8C538C37.png Our Blog - Saying Goodbye (conclusion) - Leaving the facility felt so foreign. I couldn’t determine if I was so overly exhausted that nothing felt right, or if I knew. Either way, sleep was calling me from all corners of the world. As I turned the car on, I noticed the time - 2:41. No traffic, I thought. I’d be home by 3:15. Asleep by 3:17. I drove in deafening silence all the way home. I hardly moved, I didn’t cry. When I approached my house, I felt as though I had completed a marathon. I walked in slowly and as quiet as possible. 3:12 greeted me at the top of the stairs. I didn’t change, i didn’t wash my face. I closed the guest room door where my mother-in-law slept, I kissed my babies, and I crawled onto my bed, fully clothed. I didn’t wake up until 5:34 when my phone was buzzing. Answering it with my heart dropping, I already knew. He was gone. “Hello?” I answered. “Hey Rachael, it’s Mark. I wanted to let you know that…” “Was it peaceful, Mark?” I interupted, impatient and still so tired. “Extremely,” he replied. “He was just given an early morning sponge bath. Your husband was right next to him,” he continued. “I don’t know which man loves you more,” he said after a beat. “Thank you for … everything.” I said and I hung up. He made it, I thought. His grand finale was done. He is in the place beyond, free of anything other than peace. https://www.remembermeftd.com/blog/rr9gqk0ggptmkiksrfchp0ovylvk4e monthly 0.5 2023-10-20 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/a6b131bb-02e6-4978-8640-12f81fb17517/PXL_20210319_172914442.jpg Our Blog - 6 Things I Learned About Guardianship - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/4lw1ppmuufwzitzhp9n9mshspis5br monthly 0.5 2023-08-02 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/3d6928f7-3bd7-4926-ba7a-69af58ef7562/Continuous+One+Line+Drawing.+Couples+Portrait+Poster-2.jpg Our Blog - Saying Goodbye (Part V) - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/saying-goodbye-part-iv monthly 0.5 2023-06-27 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/3d6928f7-3bd7-4926-ba7a-69af58ef7562/Continuous+One+Line+Drawing.+Couples+Portrait+Poster-2.jpg Our Blog - Saying Goodbye (Part IV) - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/preparing-to-say-goodbye-part-iii monthly 0.5 2023-06-15 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/3d6928f7-3bd7-4926-ba7a-69af58ef7562/Continuous+One+Line+Drawing.+Couples+Portrait+Poster-2.jpg Our Blog - Preparing to Say Goodbye (Part III) - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/lmxjdpp13d2lpjbb902ifwptczsyim monthly 0.5 2023-06-12 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/34fd8df7-5b05-4f88-a9fe-1d11c11726f6/E500F1C3-3B68-48EE-85E8-FAA3EFB3EA2E.jpeg Our Blog - Preparing to Say Goodbye (Part II) - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/3d6928f7-3bd7-4926-ba7a-69af58ef7562/Continuous+One+Line+Drawing.+Couples+Portrait+Poster-2.jpg Our Blog - Preparing to Say Goodbye (Part II) https://www.remembermeftd.com/blog/8gtxfwc5hexjrkvn8cmbhzjnx7g87t monthly 0.5 2023-06-01 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/67274d60-84a7-4fb1-9a98-cc1db4591a93/4B6C07C7-4AAF-4254-9C63-1E8439CF5612.jpg Our Blog - Preparing to Say GoodBye (part I) - I don’t remember getting dressed. I don’t remember grabbing a water bottle or a breakfast. I don’t remember walking out of my house. I was some how eerily transported to the front, double glass doors of my dads facility. I’ve been here before. I am ok. I remember saying to myself. I already got the call I’ve been dreading for years. As I opened the doors, the familiar smell greeted me as a nurse rushed towards me. As she lowered her mask, I recognized that this was Julie, the nice lady who called me to tell me dad was dying. I felt a rush of anger for this woman. Why did you have to call me? “Mrs. Martinez…” she began, “I’m so sor….” “Please, call me Rachael. And Please, take me to my dad right away.” She gently touched my shoulder as she turned to lead me down quiet, but well lit hallway. “Yes, of course. Right this way, Rachael. Your dad will be so happy to see you.” https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/548545ea-4da6-4e05-a992-5775a8782094/Continuous+One+Line+Drawing.+Couples+Portrait+Poster-2.jpg Our Blog - Preparing to Say GoodBye (part I) - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/llxm419urg7nkim5yhb6bt6d294zcr monthly 0.5 2023-05-24 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1684957136215-NIHMXME8S2OTFEEQK11M/image-asset.jpeg Our Blog - Disappearing Act - She was there when you were dying. Holding your hands, wiping her tear strewn face. She has said her final goodbyes, but silently weeps as she goes. She drives home and kisses her babies, stares at their chests rising and then rhythmically falling and spends an extra minute listening to the breath of her boys before collapsing on to her bed. She closes her eyes. She sees you. In her minds eye, in her dreams. She sees the body that has failed you and the mind that has caved in on itself. She sees you. Over and over again. In all of your different forms. https://www.remembermeftd.com/blog/laynieepisode monthly 0.5 2023-04-11 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/7949205f-beb5-4b12-8ae7-f5a34e71d4ac/Episode+6.png Our Blog - Genetic Counseling Episode Addendum (Resources + Links!) - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/c7mv1x8lfuq4gfktw7dcsprw1h4y80 monthly 0.5 2023-04-06 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1680808515049-QMUW57A5PYS6MG33UK9Y/unsplash-image-9KDuSi7dJv4.jpg Our Blog - If They Wanted To…They Would…Right? - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/dementia-alze monthly 0.5 2023-03-15 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1678388100882-SXRG9M8MOU41AUP1J2IM/unsplash-image-Mf_ilI6pe8g.jpg Our Blog - Dementia, Alzheimer’s + the “Others” - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1678389953347-GCMFUC9T2SKXJZRWLGAU/unsplash-image-VLaKsTkmVhk.jpg Our Blog - Dementia, Alzheimer’s + the “Others” - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/feiuuzwr0hw1numf0r3cr0418dcwin monthly 0.5 2023-03-03 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1677868935233-OV2XU7EPCIRXBDM8HO6X/unsplash-image-5B0IXL2wAQ0.jpg Our Blog - Losing You, Bit by Bit - I remember the house I grew up in. I remember the smells, the creaks in the floor, the cupboards that didn’t close all the way. The big panoramic window that greeted you from the living room with a view of manicured backyard. I remember the remodel we did and how we had to sleep in the living room as a family and how I thought that was the coolest thing. I remember the porch light always being on and the feeling of being a teenager whose friends always wanted to be at my house. https://www.remembermeftd.com/blog/to-the-ladies-of-willismoore monthly 0.5 2023-02-24 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/4d6ead97-6fb5-43cf-98ac-5f4eedfe21ff/demi-moore-willis-family-121322-549157a32e334ad0991edd055f9966cd.jpg Our Blog - To The Ladies of Willis/Moore - Make it stand out [Image Posted by People Magazine] https://www.remembermeftd.com/blog/missing-you-always monthly 0.5 2023-02-07 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/34fd8df7-5b05-4f88-a9fe-1d11c11726f6/E500F1C3-3B68-48EE-85E8-FAA3EFB3EA2E.jpeg Our Blog - Missing You, Always - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/febcommunityevents monthly 0.5 2023-01-27 https://www.remembermeftd.com/blog/yes-im-happy-k6dnr monthly 0.5 2022-12-09 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/07caed33-f23e-4abe-b9a2-bf443d15f854/IMG_0749.jpg Our Blog - Yes, I’m Happy! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/will-this-happen-to-me-xtna2-k6y37-zexbd monthly 0.5 2022-12-05 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1666109320064-OM6N201ALBGT3WIIQB7Z/unsplash-image-zuh7_uuUy9c.jpg Our Blog - Will This Happen to Me? - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1666109483942-3KNKJCR2VK31QG19MGD1/unsplash-image-BDKid0yJcAk.jpg Our Blog - Will This Happen to Me? - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/a179fc43-70ec-41b6-9f8d-ac5bc9aa25c6/Untitled%2Bdesign.jpg Our Blog - Will This Happen to Me? - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/family-systems-and-dementia-w97mc monthly 0.5 2022-12-01 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1643307077454-4SZ7Y299V87J7256PIJ4/Purple+Sky+Profile+Header.jpg Our Blog - Family Systems and Dementia - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/a179fc43-70ec-41b6-9f8d-ac5bc9aa25c6/Untitled%2Bdesign.jpg Our Blog - Family Systems and Dementia - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/isftdabstract monthly 0.5 2022-11-05 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/2fc76191-5dc3-4659-b968-ad6e8584ea70/%5BOriginal+size%5D+Abstract+Poster+%2833.1+%C3%97+46.8+in%29.jpg Our Blog - Our Abstract At ISFTD - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/connecting-with-youre-people monthly 0.5 2022-11-04 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1666107970432-969NXIYABD1I7CGWGSMK/unsplash-image-pcUSid_NEpQ.jpg Our Blog - Connecting With You’re People - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/75luegqad0o1049h2bsg5f0ho6kubu monthly 0.5 2022-10-18 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1665157789859-W2OQWGFDJOHKRZUKOWJI/unsplash-image-smuS_jUZa9I.jpg Our Blog - When I Can’t Sleep - It’s 12:02am, why are my eyes open? Close, go back to sleep. 12:29… 1:06…. What is going on? I. AM. SO. TIRED. Do I get up? Do I stay in this bed and keep turning over? Look at my husband, sleeping peacefully next to me. 2:57… My mind begins to drift off to a place and it’s like I’m somewhere between this place and where you are. Am I dreaming? Or is this real? I take a deep breath and let go. I (imagine?) that I am levitating, being pulled towards you in to the place beyond. I know i’m not dying, but the veil is definitely thin. It’s almost like you are back. Or maybe just showing me where you are. I am paying you a visit in a realm that is neither here nor there. I’m not scared but it’s definitely not a typical dream. https://www.remembermeftd.com/blog/yes monthly 0.5 2022-10-03 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1664829309483-0HKF4AO5S82450HN72Q6/unsplash-image-qAZO-wu3tik.jpg Our Blog - Yes! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/things-change monthly 0.5 2022-09-21 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/92c0b59f-7d82-4872-928c-1518062f9f93/tempImagekLy69F.jpg Our Blog - Things Change - I started at the beginning. I tried to start slow and tell the story as it should be told. But man, the feelings just came rushing back. It was as if I was transported back in time. In to the chaos, the unsettled feeling of “what the hell is happening?” … the unknown of what was to come. I was back there. Watching my dad pace the house, feeling the need to shake him; to wake him up. It’s funny how the memories morph and shift and change and yet, become part of us. They never leave. Some of the memories felt like magic - being sandwiched between my boys and my dad. Other memories felt like my heart was breaking all over again… The art of story telling is so beautiful and so sacred. It allows space to grow, to heal and to understand situations so differently. Retelling my dads story left me feeling grateful, sad and missing him so much. https://www.remembermeftd.com/blog/even-after-all-this-time monthly 0.5 2022-09-13 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/e2022882-d5cf-4efc-aecb-dc88b2a1b68a/tempImagerInnim.jpg Our Blog - Even After All This Time - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/how-to-know-its-time monthly 0.5 2022-08-30 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/7183cac7-3303-4b43-b173-f391f35f5d96/unsplash-image-8hHxO3iYuU0.jpg Our Blog - How To Know It’s Time - Independent Living: is a senior living option that is designed to enable independent seniors to enjoy an active lifestyle in a community of their peers. IL typically involves apartment style housing for an age restricted community of residents Assisted Living Facility: an option that combines apartment style housing, organized social interaction, and private support services as needed. Typically a step up from independent living. Skilled Nursing Facility: these facilities provide 24-hour health care from licensed nurses, as well as access to registered nurses (RNs) and certified nursing assistants (CNAs). While they’re generally used for short-term stays, they do provide long-term care for medically-necessary cases. Memory care: is a kind of specialized care for people living with Alzheimer’s and other forms of dementia. Communities typically feature secure environments where staff can closely monitor the health of the residents. https://www.remembermeftd.com/blog/hchmwjrr74g23fmau0yrl8bn5ynqjj monthly 0.5 2022-08-24 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1660107475343-1FXSQ0I4NRIQ6B9GVEF0/unsplash-image-hgFY1mZY-Y0.jpg Our Blog - Your Loved One Has WHAT? - Here a script that I bended and tweaked during each different “stage” Beginning: “My dad was just diagnosed with a form of dementia called FTD that normally attacks much younger. This progressive illness affects his personality, decision making and overall social interactiveness. My family is at the beginning of this and trying our best to navigate it. In the Thick of It: (Also, at this point of my dads illness, most people knew/understood my journey to some extent. but for the people that I https://www.remembermeftd.com/blog/adding-to-my-list monthly 0.5 2022-08-10 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1660099585554-GYFBVQ1JCZ3QJJDOWRNF/unsplash-image-p22zBYW3gIo.jpg Our Blog - Adding to My List - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/motherhood-infertility-and-the-ftd-journey monthly 0.5 2022-08-05 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/5e45b293-012d-44c4-ac2f-5161ca6db6ff/Screen+Shot+2022-08-05+at+1.44.29+PM.jpg Our Blog - Motherhood, Infertility and the FTD Journey - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/ba7423a1-0db4-46f5-9313-c8adcf8ca6fb/Screen+Shot+2022-08-05+at+1.43.27+PM.jpg Our Blog - Motherhood, Infertility and the FTD Journey - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/glle16pflzcm6vazbxy62wosurnda9 monthly 0.5 2022-07-15 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1626464029084-1E82L1CB26TLB7O2PPNE/5230829B-3DC4-42F1-8BD7-4EF25BCEC7B8.jpeg Our Blog - Happy Birthday, Frankie! - Today, You Would Be Sixty-Six. Today we would likely go on a hike or to the beach - you sporting your “lifeguard hat” and a smile and most likely your “UCSB Dad” shirt . Today we would get to celebrate another year around the sun. Today you would blow out your candles and smile up at us afterwards. Today you would wake up and go for a run. Today you would play your guitar extra loud. Today I would say “Happy Birthday, Daddy-o” and you would undoubtedly respond “Thanks, daughter.” Today we would shower with you attention, but not too much - you never liked to be the center of attention. Today you’d pick a fancy restaurant for dinner and blush when the server would bring over a dessert with a candle. Today you would make a wish… https://www.remembermeftd.com/blog/5ba7su1mqafwjms1kxf9il0kdui0gw monthly 0.5 2022-07-13 https://www.remembermeftd.com/blog/yh744c4ycyl2kb81t76c0lwi3lyo9o monthly 0.5 2022-07-13 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/4bd55c8a-4ea9-429e-8152-c34037521542/3.png Our Blog - Special Series: Week 2 Recap - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/0289128d-292d-4c22-aaae-05bc2b371f8c/ALLFTD+Mini-Series+Episode+Art-3.png Our Blog - Special Series: Week 2 Recap - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/19t0b6g6iwp2xtujwu9ddtfp11xs91 monthly 0.5 2022-06-14 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/78c6e891-fd87-44e6-b133-25f3fe449462/Ep+1.png Our Blog - Special Series: Week 1 Recap - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/0d105fb5-66cc-43fe-ba95-a764b8603037/2.png Our Blog - Special Series: Week 1 Recap - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/when-people-dont-show-up monthly 0.5 2022-06-13 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1654272863086-3L47UU3EFE4NI4XO77QO/unsplash-image-7lyRKyKIdJY.jpg Our Blog - When People Don’t Show Up - When my dad first started showing “odd” symptoms of FTD, (i.e. not showering as often, becoming more apathetic to my mom and I, etc), I leaned on my friends with whispered calls telling them about my encounter a few minutes prior. I spoke with my mom at large about this big change and I even confided in my new boyfriend (now husband) at the time. But you guys…. What I didn’t do? I didn’t go in to myself. I went outward hoping to find comfort and support, hoping to have my confusion solved, hoping for answers. You think I got them? https://www.remembermeftd.com/blog/1jmdchwt0bkrap406eqkkrjajd5v2l monthly 0.5 2022-05-23 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1652371601197-6R9TTM3UAQH4WADM5DL3/unsplash-image-2Jk-Tvav9HI.jpg Our Blog - The Way We Talk About GRIEF - I remember as a child, my maternal grandfather died suddenly of a stroke. I was 5. I didn’t understand death (do I now? Jurys still out!) and I definitely didn’t understand the grief that comes along with loss. What I do remember is my dad saying “your mom is in the thick of her grief. Be kind.” The thick of her grief? huh? I’m 5, dad. But, obviously, it stuck even though I didn’t full understand it. As a society, we generally don’t like to talk about grief, death and loss. It’s painful and we (as humans) don’t like things that are hard or make us feel uncomfortable. However, we are infiltrated with negativity from news outlets, comparing ourselves on social media and not being able to look away from a car accident. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1653329842666-AK6FADOURJKJG9EGBOE0/unsplash-image-X8OQkotrp0c.jpg Our Blog - The Way We Talk About GRIEF - Make it stand out Moving forward with the idea of a severed attachment, lets introduce a few key concepts/terms that really make me nod my head - YES! First is … hang on … it’s a good one. INTEGRATION Ok. So you’re grieving. Someone you loved (or were attached to) passed away. That pain, loss and sorrow needs to be not only felt, but integrated in to your life. Think about that for second. You are different now, your loss and your grief have changed you and the way you view the world. When someone fully integrates grief and that heavy loss in to their life, they are able to talk about it, they have processed it and they are familiar and comfortable with the feelings the death has produced. Have you integrated your grief in to your life? I would say mine is just starting… I am becoming one with it. The next key term is …. another good one. GRIEF LANDSCAPE When you think of a landscape, your mind typically ventures to the wide open plains or a picturesque mountain range, yes? Well lets take the mountains or the vastness of the plains and add key elements of grief scattered throughout (sorrow, anger, confusion, restlessness, etc). Now, my landscape likely looks different than yours. Maybe my “sorrow” area is much bigger than your confusion and vice versa. Perhaps my tallest peak is anger while yours is isolation… The point is, everyone will have a different view and way to navigate this landscape. And thats as it should be. As my husband says, there’s not only way to skin a cat. Grief is different for each individual. GRIEF EXPRESSION I think this is what my dad meant when he said my mom was in the thick of her grief. She was learning ways in with to express the sadness. Remember Me also produced a helpful grieving tool for our Re-Members that outlines ways in which we grieve! Wanna read it? You gotta be a Re-Member, friend! Join here. The way I express my grief is very different in comparison to Maria or my mom, even. Grief expression is important and its again, very individualistic. https://www.remembermeftd.com/blog/what-happens-next monthly 0.5 2022-05-13 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1652370251410-RPI1H1YR7T32GFJM1XA3/unsplash-image-e6APkWtSAlE.jpg Our Blog - What Happens Next? - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1652371148112-KJ7JRFK9UQ56SNU0KNKD/unsplash-image-2ZnmIddGaUE.jpg Our Blog - What Happens Next? - Thats the thing that no one really tells you about during the FTD journey. Your mind isn’t just yours anymore. You’re constantly thinking about what’s to come. We all know where this journey ends. Theres no secret about that. There is a secret I wish I had known while walking beside my dad, though. I wish I had known that this feeling was NORMAL and in direct reaction to the situation. My life got flipped, turned upside down (shout out to Fresh Prince) and I needed to never feel that jolt again. Thats a NORMAL response, you guys! https://www.remembermeftd.com/blog/bsucutveialkeszzy9f5gvdwira8qp monthly 0.5 2022-05-12 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/b8a47baa-e3bf-47eb-aad9-3020a00ca354/IMG_1373.jpeg Our Blog - 5 Ways to Lessen “That Visit Anxiety” - Plan Your Visit Ahead of Time I would usually plan to be at my dads either right before lunch or as he was finishing up. (I knew watching him eat made me feel uncomfortable - choking was always on my radar - so I knew not to go right at lunch time. Talk to the staff to see when your loved ones most optimal times are and do your best to be there during that time frame. Bring Something My Dad was a sucker for sweets, so (when he was still able) I would make sure I stopped and grabbed a special treat. When he was put on the pureed food diet, I would bring pictures/photo albums or a sensory toy, (fidget spinner, stress ball, pop it) from my kids collection. I didn’t show up empty handed. I tried my best to be at his level most of the time. I always sat in front of him and looked him directly in the eye (unless we were on a walk!) and spoke to HIM (not about him to someone else). I sat so he could see me and made sure to give him a touch now and then. Another helpful tip : try and refrain from asking “do you remember…” and use this helpful sentence starter - “ I was thinking about the time when …” https://www.remembermeftd.com/blog/that-visit-anxiety monthly 0.5 2022-04-05 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1649118995058-8L2FJV6L33A4QY9QPX8O/unsplash-image-oUF0heqVFwc.jpg Our Blog - That Visit Anxiety - It was never about NOT wanting to see my dad. Never, ever. I looked forward to our weekly visits and although it was nerve wracking and anxiety producing, I knew I wanted to see him as often as I possibly could. This anxiety was triggered by the awkwardness that our visits could potentially hold. I never knew what I was going to get when I walked in to his facility (please don’t be fooled that each visit was sugar plums and rainbows. They weren’t all pleasant). Would he be asleep? In bed? Would he be in the “rec” room? Or situated in the front lobby, a place where they frequently positioned him. Beyond all that - what I feared the most was that he wouldn’t perk up at the sight of me or holler out after I said hello. That would absolutely CRUSH me. The anxiety was always overruled by tangible desire to see him, to sit next to him and feel his gentle presence. But that doesn’t mean it wasn’t there. It just means that my love was stronger than my fear. So in I went. Time and time again. https://www.remembermeftd.com/blog/grief-part-iv monthly 0.5 2022-03-17 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/badc9b9b-1e72-425c-8e1f-8a21819bc541/IMG_5570.jpeg Our Blog - Grief : Part IV https://www.remembermeftd.com/blog/toxic-positivity monthly 0.5 2022-03-13 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1646169772132-S7H1H6K4Q128CCMECG2H/unsplash-image-7h4ladPzhn0.jpg Our Blog - Toxic Positivity? - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1646173796616-VDQOX2W2P99DIEBNV1TW/unsplash-image-wEYzCh4XZSI.jpg Our Blog - Toxic Positivity? - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/a-brain-healthy-smoothie-recipe-by-neuroreserve monthly 0.5 2022-02-23 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/75bf0337-f132-46e6-949a-6fc391e4954f/Blueberry%2C+Cauliflower+and+Spinach+Smoothie.JPG Our Blog - A Brain Healthy Smoothie Recipe by NeuroReserve - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/february-events-in-the-ftd-community monthly 0.5 2023-01-10 https://www.remembermeftd.com/blog/what-i-love-most monthly 0.5 2022-02-09 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1644430339633-IVDPWSZ4R7P9OEUFDLLD/unsplash-image-bwtgal6MJLM.jpg Our Blog - What I Love Most - Make it stand out I love to laugh. I love my children and my husband. I love the smell of the first rain. I love my pasta and my showers the exact same way, blazing hot. I love being excited about a novel i’m reading so much so that I look forward to opening it up in silence. I love hearing my kids call me from upstairs. I love waking up in the morning and forgetting that I moved. I love the fact that people still say hello to each other in my neighborhood. I love clean sheets. I love when a good song comes on the radio and I can jam out. I love when my husband looks at me like I’m the only person in the room. I love when my mom calls me hunny. I love when I make a perfect dinner that my entire family eats. I love a summer breeze. I love getting ready for a night out. I love when someone says I remind them of my dad. I love research. I love thick toilet paper and bbq burgers served on paper plates. I love the red faces of my kids near the waters edge on a family beach day. I love when the Amazon truck pulls up. I love picking up my kids from school. I love fresh flowers. I love the carwash and the feeling of a clean car. I love when someone scratches my back. I love getting cards “just because.” I love candles and the light they provide. I love friends who forgive. I love second chances … but not thirds. I love when i’m at a concert and the artist stops and lets the audience sing. I love tequila. I love palm trees. I love couches that allow you to melt in them. I love when I get really mad and feel alive. I love sleepy eyes. I love to attend live sporting events. I love that my neighbors love my kids. I love that I my parents allowed me to make mistakes. I love my therapist. I love the sense of endless possibilities. I love the smell of kids towels. I love when I see someone I know out in public. I love when my husband fills up my gas tank. I love when my kids bring home school projects or something they’ve been working on in class. I love soft pajamas. I love birthdays and celebrating them BIG. I love when Nick throws something my way and I actually catch it. I love family bike rides. I love Orcas. I love exploring but only to extent. I love target. I love dinner parties. I love togetherness. I love solace. I love empathy. …. to be continued. https://www.remembermeftd.com/blog/6-things-i-learned-about-power-of-attorney monthly 0.5 2022-01-20 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/9fcb31ec-cedd-4548-bc76-07ba78da227d/RM+Blog+banners.png Our Blog - 6 Things I Learned About Power Of Attorney - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/f7da2ec6-debc-422d-8950-b5b810d4ed48/keri+bio+pic.jpeg Our Blog - 6 Things I Learned About Power Of Attorney - Make it stand out By Guest Blogger Keri Allen Keri is a passionate advocate for FTD, all in honor of her father, Mark. Keri is a social media consultant and a dear friend of Remember Me. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/980dd1a6-1ad4-4955-878f-190f5d493a7a/3.png Our Blog - 6 Things I Learned About Power Of Attorney - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/f59b9f4e-6e0a-41d7-a029-fd07d6738bcf/4.png Our Blog - 6 Things I Learned About Power Of Attorney - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/496d9e53-b50d-44d2-a095-9f2b8e8ed2b4/5+%282%29.png Our Blog - 6 Things I Learned About Power Of Attorney - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/c85c515f-dcd1-4a2d-8167-2e4558b174ee/6.png Our Blog - 6 Things I Learned About Power Of Attorney - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/6251ac9f-43d9-4da0-9ffb-7a0c9cfb248e/7.png Our Blog - 6 Things I Learned About Power Of Attorney https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/5676ec2b-0105-4f88-bb84-1f2a2474916b/8.png Our Blog - 6 Things I Learned About Power Of Attorney - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/10-lessons-i-learned-after-my-mom-died monthly 0.5 2022-01-06 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/f0e1fe1c-009b-4502-9fcb-29b435f938a4/D583F50A-A024-4236-BE44-EFC68D649DD0.jpeg Our Blog - 10 Lessons I Learned After My Mom Died - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/9c78e2b9-76b0-44df-a34a-52c21517374e/DF9D0A4F-5390-461F-9A7A-E15922987C6E.jpeg Our Blog - 10 Lessons I Learned After My Mom Died - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/you-and-your-pink-sky monthly 0.5 2021-11-22 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1637597822398-RDNRRNZTLIZ4EO516E7P/unsplash-image-Qi8CvonsYnM.jpg Our Blog - You and Your Pink Sky - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/an-incomplete-list-of-things-im-grateful-for monthly 0.5 2021-11-15 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1636999479332-6MCL22IA33U4FBKCIKJV/unsplash-image-tuei08u_9SU.jpg Our Blog - An Incomplete List of Things I’m Grateful For. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1636999730314-2REHDZQ6826NCS0JRVH4/unsplash-image-BCuxVP5WEsU.jpg Our Blog - An Incomplete List of Things I’m Grateful For. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/10-lessons-i-learned-after-my-dad-died monthly 0.5 2021-11-10 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/676ba45e-34e1-451a-9e7c-8053f4fce94b/IMG_3840.jpeg Our Blog - 10 Lessons I Learned After My Dad Died - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/42f703a3-efbb-4fb7-8406-2308b292eed2/Screenshot+2021-11-05+at+12.28.20+PM.jpg Our Blog - 10 Lessons I Learned After My Dad Died - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/3a0351f5-9050-4425-894b-c30ecdfe0d74/B4E7E10C-FDD0-49F0-9A34-3FAEC2894B00.jpg Our Blog - 10 Lessons I Learned After My Dad Died Grief is delicate and complicated I never experienced this type of sadness. I’ve lost grandparents, friends, pets; I’ve been heartbroken over relationships that ended and jobs that didn’t work out … but this type of sorrow is different. It’s fragile. It’s rare. Because my dad was sick for so long, I faced anticipatory grief as well … both sides of the coin are depleting. Grief is hard and it’s messy and it will ebb and flow. All of that is ok. Grief is also a very sacred experience, it means you love hard. Be gentle with yourself and be gentle with fellow grievers. There is no manual to make this darkness go away. No one will EVER love me like he did. I am so greatly and completely aware that my dad loved me. I was the apple of his eye and he let me know as often as he could. Even through https://www.remembermeftd.com/blog/yl2guw95380gjd5rsmpz5xzf36l9vv monthly 0.5 2021-10-19 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1634608984527-CEEZFO5DBD3Y38UF38JK/DjCp3-1XsAA6-L7.jpg Our Blog - Episode Recap: Adele (Lauren Miller Rogen) - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1634610003526-Z449JHLXDILKXQK5Z5TJ/seth+and+lauren+walking+with+Adele.jpg Our Blog - Episode Recap: Adele (Lauren Miller Rogen) - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1634629674574-CYBV5BJDSAVAMTLU38JO/public.jpeg Our Blog - Episode Recap: Adele (Lauren Miller Rogen) https://www.remembermeftd.com/blog/5-hfc-resources-you-should-check-out-today monthly 0.5 2021-10-19 https://www.remembermeftd.com/blog/grief-part-iii monthly 0.5 2021-10-14 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1634245104383-OB4C9V5VISBCXX0OYH1J/unsplash-image-cNIJfrV01aA.jpg Our Blog - Grief, Part III - Grief is lonely, it’s heavy and depleting. It’s tiring and all consuming. It’s full of ebbs and flows. I miss my dad more than I can accurately express. I miss him in the little and in the big things. In the morning and the slowness of the evening. I miss his name appearing on my phone in the middle of the day to “check on you, daughter.” I miss his voice. I miss the security that he gave my mom. I miss the good, opened mouth laugh he would blurt out (usually laughing at one of his own jokes!). I miss his smell but what I miss most of all is the way he loved me. It was the most gentle love I have ever known. Grief is a part of life, but what i’m learning is… Grief is the last of act of love we have to give to those we loved. Where there is deep grief, there was great love. https://www.remembermeftd.com/blog/episode-recap-mary-season-3-episode-11 monthly 0.5 2021-09-24 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1632495446346-OPU4NOPBTQ0FNNOSSJNL/Dad%2C+Shelley%2C+Mom%2C+Chris.jpg Our Blog - EPISODE RECAP: MARY (SEASON 3, EPISODE 11) - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1632495554734-R5BQ7NCJ58488YUXA28F/Patty%2C+Mary%2C+John.jpg Our Blog - EPISODE RECAP: MARY (SEASON 3, EPISODE 11) - Make it stand out Siblings: Patty, Mary and John. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1632495485109-CUGYS6X9OF41WW1SQBWY/Donna+and+Mary.jpg Our Blog - EPISODE RECAP: MARY (SEASON 3, EPISODE 11) - Make it stand out Mary and her best friend Donna Lee, mentioned in the episode. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1632496202363-86SECULUHNOA839CUNHT/Round+Mothers%21.jpg Our Blog - EPISODE RECAP: MARY (SEASON 3, EPISODE 11) - Make it stand out The Round Mothers (Mentioned in the episode!) https://www.remembermeftd.com/blog/the-transition monthly 0.5 2021-09-17 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1631893386596-V06V08PCQK28RDUKNT8Y/B86F2A21-125A-45B0-AA90-31E82A067986.jpeg Our Blog - THE TRANSITION - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1631893520411-2X1IBSEYMRX5KCHD7H7P/8B572633-4E2F-4AC6-B3C3-1D746ED0D801.jpeg Our Blog - THE TRANSITION - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/the-after monthly 0.5 2021-09-13 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1631574308986-8E8FOASNOS0DFY5VGDES/unsplash-image-4wFqHZ1ONnM.jpg Our Blog - The After - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/welcome-relevate monthly 0.5 2021-09-12 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1626109934063-DO6XC55IJR7CN558RVGX/unsplash-image-nTZOILVZuOg.jpg Our Blog - WELCOME, RELEVATE! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1629827770820-1BRXG0ASN51Z9KXOSLZJ/A66BBB45-E692-4283-B76E-839B0F65FC3D.png Our Blog - WELCOME, RELEVATE! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/blog/the-diagnosis-room monthly 0.5 2021-09-12 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1625076309044-QIK4SC3ENYVPCXE76HY1/unnamed.png Our Blog - The Diagnosis Room - Keri Allen - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1625076729672-A33G7XBK4F77WX35MY2X/unnamed-2.png Our Blog - The Diagnosis Room - Keri Allen - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1625083417933-FD3NAQZ9S9V58XRL3WR3/Blog+Photos+Diagnosis.png Our Blog - The Diagnosis Room - Keri Allen - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1625086898867-KZVVA30Z7LV8U5D1G82L/October%2BSale%2BAesthetic%2BEarthy%2BTones%2BInstagram%2BPost%2BTemplate%2Bby%2BIlona%2BRepkina-3.jpg Our Blog - The Diagnosis Room - Keri Allen https://www.remembermeftd.com/blog/brain-donation monthly 0.5 2021-09-12 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1623890293453-ZA1E0UCMNHXFQ0V99OLP/White+and+Charcoal+Stars+Delicate+Love+Quote+Instagram+Post-2.png Our Blog - A Hard Choice: Deciding On Brain Donation - A few things to be ready for which I wish someone would have told me. You keep your brain donation team on standby when death is imminent. For example, when I got the call that Frankie was on his way out, after calling my mom, I called my contact at the Brain Support Network (that’s the company we used! Linked here). https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1623890257761-1LAV867B62YAWXYRLW7Z/White+and+Charcoal+Stars+Delicate+Love+Quote+Instagram+Post-3.png Our Blog - A Hard Choice: Deciding On Brain Donation - Helpful LInks Brain Donor Project NIH (NeuroBioBank) NIH and Brain Donor Project have partnered and are great resources to work with together. 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- Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/events/art-night-with-maria-june25 monthly 0.5 2025-06-24 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/17f39417-835c-43fe-ad1c-c1e563cf9758/Art+Night+with+Maria.png Events - ART NIGHT WITH MARIA: Let's Make Bracelets! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/7e45189c-8c44-4a3d-ad78-9b7aed94cabf/Art%2BNight%2Bwith%2BMaria%2B%25281%2529.jpg Events - ART NIGHT WITH MARIA: Let's Make Bracelets! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/events/friends-of-rm-lorenzos-houses-5th-annual-youth-summit monthly 0.5 2025-05-22 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/da17d7c8-624b-496a-ae5b-5613eae894a4/lorenzo.jpg Events - Friends of RM: Lorenzo's House's 5th Annual Youth Summit - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/events/re-members-only-pop-up-art-night monthly 0.5 2024-12-14 https://www.remembermeftd.com/events/re-members-only-art-night monthly 0.5 2024-11-14 https://www.remembermeftd.com/events/book-club-sandwich monthly 0.5 2024-11-14 https://www.remembermeftd.com/events/hands-heart-processing-through-art monthly 0.5 2024-08-28 https://www.remembermeftd.com/events/study-hall monthly 0.5 2024-08-28 https://www.remembermeftd.com/events/holdingspace monthly 0.5 2024-08-29 https://www.remembermeftd.com/events/re-members-only-yoga-with-corey monthly 0.5 2024-08-29 https://www.remembermeftd.com/events/roundtable-mothers-day monthly 0.5 2024-04-24 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1713278050178-M927IFYNDZM6BGW0SLMV/Botanical+Happy+Mothers+Day+Instagram+Post.png Events - Free Roundtable Event: Let’s Talk About… Mother’s Day - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/8a3ae05f-ee33-470d-a461-8b9546c6a355/remember-me-123-cliffwilliam-_CWF2956+%282%29.jpg Events - Free Roundtable Event: Let’s Talk About… Mother’s Day - Your Facilitators: Remember Me Podcast Hosts Rachael Baffa Martinez & Maria Kent Beers. Learn more about Rachael and Maria. https://www.remembermeftd.com/events/managing-family-dynamics monthly 0.5 2024-04-16 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1696616819271-FELV1AICECZ2Y9CBAL3Y/remember-me-039-cliffwilliam-_CWF2184.jpg Events - Understanding Family Dynamics: A 2-Night Course in Self-Discovery - Your Instructor: Rachael Baffa Martinez Rachael is a trained Marriage and Family Therapist with a Masters degree in Clinical Psychology. She is a Certified Grief Specialist. A true Los Angeles native, Rachael always prefers the sunny seat at the table, encourages dance parties in the kitchen and is a serious believer in Y.O.L.O. Mama of 2 wild boys, Rachael’s clever, “tell-it-like-it-is” personality and endearing inclusivity makes people from all walks of life feel welcome and embraced. https://www.remembermeftd.com/events/mindreaders-marylou monthly 0.5 2024-04-23 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1713454674818-TCVM5U6R6ZZOF2L8BBQ0/Book+Club+IG+Art+%286%29.png Events - Mind Readers Book Club - Open Event - “I Didn’t See It Coming" An Evening with author Mary Lou Falcone - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/events/mindreaders-wedanced monthly 0.5 2024-04-10 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/76a9a0ca-e2f4-468a-b763-10057e493f1d/Book+Club+IG+Art+%281%29.png Events - Mind Readers Book Club - We Danced: Our Story of Love & Dementia with Author Scott Rose - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/events/re-members-only-gentle-yoga-with-joanna monthly 0.5 2024-03-07 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1b62bc4f-a5c9-4604-9f6f-12b7678684b7/Dec++Jan+IG+Post+Ideas+%2817%29.png Events - Re-Members Only: Gentle Yoga with Joanna - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/events/managing-family-dynamics-course monthly 0.5 2024-04-11 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1708453987193-5XMOYT3EQD0ZBINAZ4JZ/Dec%2B%2BJan%2BIG%2BPost%2BIdeas-7.jpg Events - Managing Family Dynamics - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.remembermeftd.com/events/roundtable-with-remember-me-goofy-griefy monthly 0.5 2024-01-19 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/a6d7bbc8-be5a-42bf-9c17-ddb1767a23b9/Dec++Jan+IG+Post+Ideas-4.png Events - Roundtable with Remember Me: Goofy Grief - Our First Publicy Open Roundtable for 2024! Join us as we discuss all the the goofy/silly/peculiar things we do/have done in during our grief! Maria will definetley go first (hint: Rachael already knows!) in sharing a something she started doing after Lia passed. Wonder what it could be! **Please note this event is open to the public https://www.remembermeftd.com/events/mindreaders-book-club monthly 0.5 2024-01-17 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1705515582317-T5WV6CT2V0Q8NF57F219/Dec++Jan+IG+Post+Ideas-2.png Events - MindReaders Book Club - Y’all already know how excited Rachael is to discuss this book! Pour yourself something tasty, grab your book and your thoughts and lets discuss! This is an event for members of our Re-Members Only space. 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Living in Boston, Maria loves to get lost in art, pop culture podcasts and definitely enjoys her housewives. Maria loves her sweet pup, her Greek traditions, and pursuing her dreams. Maria has always had a love of radio and editing, receiving a TV Production Degree from Boston University where she was a host of BU In The Morning Radio Show. She also spent time at MTV Radio as an intern in NYC before falling into the world of fashion merchandising for 7 years. When Maria isn’t editing or recording new episodes with her sidekick, Rachael, you can find her perusing the aisles of Michael’s in search of her next project, enjoying the hip spots in the city or loving on her sleepy bulldog. Maria fancies herself a good traveler, a creative and cook. She prefers sweet over salty, a good hoppy IPA and trying new things. Adventure calls and she’s first to answer! Favorite Color: Pink and Orange Favorite Movie: Love & Basketball Lucky Number: 23 Favorite Artist: I’m basic, I love Coldplay forever. 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Mama of 2 wild boys, Rachael’s clever, “tell-it-like-it-is” personality and endearing inclusivity makes people from all walks of life feel welcome and embraced. Rachael is a trained Marriage and Family Therapist with a Masters degree in Clinical Psychology. Rachael prefers her tequila smooth and straight (shaken, not over ice!), anything Justin Timberlake related, live sporting events and salty over sweet. When she’s not recording, you can find her hanging with her family, nose deep in a book or binge watching a murder mystery docu-series on Netflix (but only in the day, nighttime is too scary!) Favorite Color: In general? Blue. To wear? Black or white Favorite Movie: Ohh, gosh. Just one? Dirty Dancing, Life Itself, The Hours. Lucky Number: 23 Favorite Author: Hemingway or Didion Zodiac Sign: Libra Favorite Place: Santa Barbara, Mexico, Costa Rica, or Venice, Italy. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/5c94101f-110a-4615-9bfc-b9e21971e0a2/0DA17711-0EED-4DE8-99EE-539E4419D2BA.jpeg https://www.remembermeftd.com/ftd daily 0.75 2023-03-27 https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1647376578136-37LR9EIQSDLW4XNJHYLM/unsplash-image-FW-hh1UG6DU.jpg What is FTD? Newly Diagnosed https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1647377666032-AJTN37FAKSDYHY24SNTL/unsplash-image-IUY_3DvM__w.jpg What is FTD? In The Thick Of It https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1647377514079-5G8X0NN325WSJU7X30QW/unsplash-image-43rqnV_ZfC4.jpg What is FTD? 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Print them out, print out copies for your loved ones and sit down and tackle each item, line by line. Doesn’t have to be completed in a day, but we do believe it will only set you up for success. If you can work proactively instead of reactively, we guarantee a smoother ride. https://images.squarespace-cdn.com/content/v1/5f4d767a97ce7865bd83f4ff/1652368665632-TZII55QGYUQZ4ANLGXVS/unsplash-image-OiqlyIwrHy8.jpg Newly Diagnosed - Breathe It. This is all very overwhelming. We know it, we’ve been there. As cliche as it sounds, you gotta put your mask on first! Taking time to fill your cup so you can pour in to others is invaluable. Trust. 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